Wall mounted bell that patients ring at the end of their course of radiotherapy
Moaning, Oligodendroglioma, Radiotherapy

It tolls for thee

Yes, I finished radiotherapy, and yes I rang the bell, but it was an anticlimax. Why? Well, lots of reasons really. First off, the day before my final treatment, at the weekly clinician review Sarah the Neuro Oncology nurse specialist reminded me that radiotherapy side effects usually get worse for a few weeks after you… Continue reading It tolls for thee

Oligodendroglioma, Radiotherapy

29/30

Tomorrow is my last day of radiotherapy, the last of the 30 sessions, and the day I get to ring that bell like an enthusiastic Quasimodo. I've had a surprisingly easy ride, with relatively mild side effects, but the last few sessions have been a bit of a slog and I am more than ready… Continue reading 29/30

Oligodendroglioma, Radiotherapy

Being brave

You're so brave! This is what people say to you when you're going through something like this. Nah. It's not bravery, it's lack of choicery.  Life lobs these boulders in all of our paths, and you either climb over them or sit down and give up. No one makes it through unscathed, and we all… Continue reading Being brave

Moaning, Oligodendroglioma, Radiotherapy

Hairmageddon

First off I need to make it clear that many people lose all their hair due to chemotherapy (even nose hair! who knew?) or alopecia and that is so very much worse than what is happening to me. I am lucky really, and need a dry slap. But I'm still going to whine. At length.… Continue reading Hairmageddon

Moaning, Oligodendroglioma

There’s a ghost in my house

It’s me. This is the second Saturday in a row that I feel really quite down. A useless burden. Full of hate, and hateful.  This tumour is like a newborn baby. It consumes all your time and available memory, leaving you with nothing else to talk about, boring the pants off everyone else.  There's nothing… Continue reading There’s a ghost in my house

Oligodendroglioma, Radiotherapy, Seizure

Waiting for the shoe to drop

Although I knew full well that it takes around two weeks for any radiotherapy side effects to show themselves, it's hard not to interpret each and every twinge during the first half of my six weeks of daily radiotherapy as A Sign. Is this tired feeling a symptom of the treatment, a side effect of… Continue reading Waiting for the shoe to drop

Oligodendroglioma, Radiotherapy

Radio 1

What I most hope radiotherapy will do is turn me in to a superhero. Most likely the Incredible Hulk, because Bruce Banner got zapped by gamma rays and it happened to him. Surely radiotherapy will look exactly like this? Crosshairs, weird contraption chair? It IS a given. To say I spend an inordinate amount of… Continue reading Radio 1

Radiotherapy mask
Oligodendroglioma, Radiotherapy

The Mould Room

And speed up everything did. The day after meeting Paula, the mask fitting, an MRI and CT scan were arranged for the following two days.  None of us could work out why it would take two days to make the mask. E suggested it's made on the first day and I get to go back… Continue reading The Mould Room

Oligodendroglioma, Radiotherapy

It’s not a given

The thing about brain tumours is that there are over 120 types. Granted, adult primary brain tumours tend to be one of a handful of types, but multiply that by all the different places in your brain they could occur, and times that by the age and underlying health of the person who owns that… Continue reading It’s not a given

Oligodendroglioma

Maggie Macmillan

I'm writing this while a third of the way in to 30 sessions of radiotherapy, and the side effects of getting a high strength blast of x-rays to the brain every day are starting to kick in.  Please bear with me if it's a bit rambling and it takes a while to get new posts… Continue reading Maggie Macmillan