Oligodendroglioma, Radiotherapy

29/30

Tomorrow is my last day of radiotherapy, the last of the 30 sessions, and the day I get to ring that bell like an enthusiastic Quasimodo. I've had a surprisingly easy ride, with relatively mild side effects, but the last few sessions have been a bit of a slog and I am more than ready… Continue reading 29/30

Oligodendroglioma, Radiotherapy

Being brave

You're so brave! This is what people say to you when you're going through something like this. Nah. It's not bravery, it's lack of choicery.  Life lobs these boulders in all of our paths, and you either climb over them or sit down and give up. No one makes it through unscathed, and we all… Continue reading Being brave

Moaning, Oligodendroglioma, Radiotherapy

Hairmageddon

First off I need to make it clear that many people lose all their hair due to chemotherapy (even nose hair! who knew?) or alopecia and that is so very much worse than what is happening to me. I am lucky really, and need a dry slap. But I'm still going to whine. At length.… Continue reading Hairmageddon

Oligodendroglioma, Radiotherapy, Seizure

Waiting for the shoe to drop

Although I knew full well that it takes around two weeks for any radiotherapy side effects to show themselves, it's hard not to interpret each and every twinge during the first half of my six weeks of daily radiotherapy as A Sign. Is this tired feeling a symptom of the treatment, a side effect of… Continue reading Waiting for the shoe to drop

Oligodendroglioma, Radiotherapy

Radio 1

What I most hope radiotherapy will do is turn me in to a superhero. Most likely the Incredible Hulk, because Bruce Banner got zapped by gamma rays and it happened to him. Surely radiotherapy will look exactly like this? Crosshairs, weird contraption chair? It IS a given. To say I spend an inordinate amount of… Continue reading Radio 1

Oligodendroglioma, Radiotherapy

It’s not a given

The thing about brain tumours is that there are over 120 types. Granted, adult primary brain tumours tend to be one of a handful of types, but multiply that by all the different places in your brain they could occur, and times that by the age and underlying health of the person who owns that… Continue reading It’s not a given

Limbo

The hard wait

The first few days back at home were easy. It still hadn't really occurred to me to worry too much about the biopsy results. The biopsy itself had been the hurdle, and had been cleared. My sister in law came to visit for a few days with her toddler son. It was a lovely distraction… Continue reading The hard wait

Hospital, Limbo, Moaning

The easy wait

The day after the biopsy began with all the usual poking and prodding that comes with hospitals. Two healthcare assistants, Wendy and Jean came to offer me a bed bath. It seemed a bit previous, having met them mere seconds before, so I politely declined. They offered me a bowl of water to give myself… Continue reading The easy wait

Hospital, Limbo

I bring you love

A few seconds in to a dream, Steve the recovery nurse brought me round from the anaesthetic. Bald on the top, with silver hair at the sides, and fairly rotund, Steve was the most beautiful and wonderful man I have ever met, bar my husband. He asked how I was. "BRILLIANT! I'M ALIVE!" I shrieked… Continue reading I bring you love

Children play on the beach under a blue sky
Hospital, Limbo

Trepanning

The days before the biopsy are a bizarre mix of the ridiculous (my hilarious neighbour trying to convince me that there has been a spate of women running off with their robot surgeons) and the way too sensible (applying for a Power of Attorney so A can at least access all my financial affairs if… Continue reading Trepanning